It’s Day 3 of #GastroparesisAwarenessMonth! Today’s topic covers the Gastroparesis Diet. The graphic below shows 3 general stages for a #GastroparesisDiet: Liquids, Limited, and Maintenance. It’s important to understand that it’s not a black and white picture of what can and cannot be eaten. There’s a wide spectrum and each person fluctuates on this scale depending on the severity of the condition and if they are in a Flare or not. Many people need the assistance of feeding tubes or TPN because even Liquids are not tolerated.
If you are struggling with symptoms, I highly encourage you see a medical professional in a #DigestiveDisorders specialty. I know it can take a while to get in to see someone so I have provided a link to a site that gives examples of a Gastroparesis Diet in different stages.http://www.arizonadigestivehealth.com/gastroparesis-diet/
Spread #awareness to help #CureGP. #DTP (Digestive Tract Paralysis) affects 1 in 25 #Americans #Gastroparesis is under this umbrella.
Two of the biggest symptoms of Gastroparesis are nausea and vomiting. These two symptoms can be debilitating to a person and make it unbearable to complete otherwise simple tasks.
For me, Gastroparesis had forced me to have this feeling every day. Sometimes lasting for just a little while but other times all day… sometimes for days at a time. A majority of the time food is the source. There’s some days though where I won’t eat anything at all and I still feel like I’m going to vomit at any given moment.
It’s hard to function when you don’t feel like yourself, let alone if you feel like you’ve been spinning all day long. In the image below, I have included an imagery Exercise to allow those who don’t have Gastroparesis to take a Glimpse into our world. To close your eyes and force yourself to walk a day/week in our shoes.
Remember to spread the word about Gastroparesis. You could be saving a life by acknowledging someone’s symptoms. #GastroparesisAwarenessMonth
It’s day 1 of #GastroparesisAwarenessMonth! Starting today and through the next 30 days, I will be posting daily with information to help spread #awareness. My intention is to educate others on the ins and outs of this troubling disease and hopefully give some people a little peace of mind when they find out they aren’t alone in this fight. Together we can spread the word, help others, and find a cure for#Gastroparesis. Help spread awareness by sharing with everyone you know. Someone may be suffering symptoms and not even know how to approach their situation.
The biggest thing to know about Gastroparesis is that it’s different for everyone. Symptoms and intensity of the symptoms vary and it is extremely difficult to diagnose. I dealt with my symptoms for 7 months before I found a doctor that could diagnose me correctly. I spent an additional 5 months suffering through symptoms, different medications, and side effects before I had a pacemaker placed. Then 2 more months until I was able to tolerate some foods again. After all of that I still went through several months of doctor visits to adjust the settings on my pacemaker until we found the setting that allows me to function “normally.” I still have good days and bad ones but without that doctor’s help I would be under 100 lbs and slowly #starving to death. It sounds dramatic– but that’s because this #invisibleillness can become extreme if not correctly diagnosed and managed. Help spread the word. Thanks! #CureGP
So it’s been like a year since I posted and honestly it’s probably for the better because a lot has happened and my readers don’t need to be 100% involved in my life. Sorry. But as far as Gastroparesis is concerned…
It’s been over a year since the pacemaker was implanted and I’m extremely happy to announce that it has been completely successful! I’m maintaining my weight and having minimal bad tummy days! I’m extremely hungry all the time but I can actually eat now! I know others have it way worse and outsiders don’t seem to understand my roller coaster but it’s all good.
Gastroparesis Awareness Month starts on Monday and I’ll be back at it with the daily informational posts! Make sure to share and inform others! Feel free to ask any questions!
It’s sunny for me even though it’s storming outside. 🙂
Dealing with illness is hard enough already. You’re trying to get through your day while taking medicine and trying to heal your body. You just feel like a mess.
Dealing with chronic illness makes it harder because it’s a daily struggle. Adding the pressure of those uninformed people who judge you for being sick again starts to eat at you mentally.
Dealing with an invisible chronic illness might just have to be the most insane thing anyone could have to deal with. You’re struggling daily, but you don’t look sick. You are repeatedly told to just have good thoughts and you will feel better. I promise you sir, I have thought and wished so hard to be “better” my head could explode.
But the world works in funny ways and phrasing should always be carefully planned. I wished “to be better” not cured. I’m not rid of my illness but as a person I consider myself “better.” I now know what is important in life. I know how far I can push myself and I have learned to live within these limits. I know how to manage my spoons and I feel sad for those that will never figure out the answers to certain life questions until it’s too late. I am “better” because I am strong enough to be a voice for those who are too weak at the moment to speak up and educate others.
It’s Invisible Illness Awareness Week and there are so many invisible illnesses out there! They range from well known like Cancer to the misunderstood like mental illness and eating disorders to the unheard of like Gastroparesis. I intend to spread awareness as much as I can and would appreciate your help in sharing information also.
#GastroparesisAwarenessMonth Day 20:#Warriors
Anyone fighting an #invisibleillness or a #chronicillness is a #warrior, They are #fighting a battle and refuse to give up. Even though they can get knocked down, a warrior will fight to get back up. The disease cannot and will not win.
Pictured, are just a few warriors. There are literally millions in #America #starving for a cure. 1 in 25 Americans are affected by #Gastroparesis. That’s 4% of the population.
#GastroparesisAwarenessMonth Day 13: #MakingADifference
Throughout the past 2 weeks I’ve been posting to educate others on this #InvisibleIllness called #Gastroparesis. Some have asked me what they can do and I say #SpreadTheWord. The other thing that everyone can do is help us spread the word in #Congress.
Gastroparesis is #debilitating and can literally #starve us to death. There is no #cure and no way to treat the cause because many don’t know how they acquired the #disease in the first place. There are only temporary band-aids to help treat #symptoms. You would think that if a disease doesn’t allow someone to work or even just live normally day to day that the person would qualify for #disability. But the fact is, Gastroparesis is NOT considered a disability and many who file for the assistance get denied.
We need to take a #stand and force our congressmen and government officials to #listen to us and see that something is done to make this happen. Please #sign and make your voice heard!
Also, just because we post that it is Gastroparesis Awareness Month– it doesn’t mean it is nationwide…yet. Many states have approved #proclamations for a week or month but not all have done so. This proclamation asks that #Congress officially proclaim August as Gastroparesis Awareness Month in the United States.
Lastly, there is a #Bill in the #HouseOfRepresentatives right now asking: “to expand the research activities of the National Institutes of Health with respect to functional gastrointestinal and motility disorders, and for other purposes.” This bill is known as #HR2311 – Functional Gastrointestinal and Motility Disorders Research Enhancement Act of 2015.
As of right now there are 3 cosponsors of the bill– Rep. James F. Sensenbrenner, Jr. [R-WI-5], Rep. Andre Carson [D-IN-7], and Rep. Zoe Lofgren [D-CA-19]. For more information on this Bill, please visit: https://www.congress.gov/bill/114th-congress/house-bill/2311
We need a cure and we need #awareness. We need a #method to figure out a diagnosis before we starve to death looking for answers.