Day 5 of #GastroparesisAwarenessMonth! A #Spoonie is a nickname for a person living with #chronicillness, that identifies with Christine Miserandino’s #SpoonTheory. Her full story can be found athttp://www.butyoudontlooksick.com/category/the-spoon-theory/. The reader’s digest version is a person living with a chronic illness; hypothetically measuring personal daily activities and comparing with the proper amount of spoons needed for an event or occasion… sometimes you have an abundance, other times you come up short. Her theory is a way to physically describe how someone is getting through day by day to someone who may not understand completely.
#Gastroparesis takes away time, friends, family, work, school, food and more. The spoon theory shows that someone with this #invisibleillness isn’t being selfish when they cancel plans, they simply used their spoons to go to work, or take care of their family. You don’t really know what #fatigue is until you NEED to rest after taking a shower.
Since there is no #cure for Gastroparesis, we are told that we need to learn to manage our symptoms. That sounds easy enough but there is no standard testing to diagnose our symptoms. There is no standardized plan of action. There is simply trial and error once we find a doctor willing to take on our case. For a #disease that affects 1 in 25 #Americans, there isn’t much that can be done. We need #awareness, we need a cure.#CureGP.